EVENTSbyORISEvent management and registration system
Use this event registration system to register for upcoming conferences, classes, workshops, seminars, and other training activities sponsored by various departments and offices at UNC-Chapel Hill.
To begin your online registration, simply browse the event listings, select the event you wish to attend and complete the online registration form. Your registration will be confirmed by email.
To Inquire about becomming an Admin of your own events, contact Lori Saddler at lsaddler@unc.edu
Unlocking Equity: Disability Inclusion in Precision Medicine Research
Location
virtual
Sponsor
Center for Genomics and Society
Date/Time
05/10/2024
12:00 PM
- 1:15 PM
For more information, contact the event administrator:
Kriste Kuczynski
kriste.kuczynski@unc.edu
5th in the Carolina Seminar Series, "Science meets society at the intersection between precision medicine and justice, equity, and inclusion"
Unlocking Equity: Disability Inclusion in Precision Medicine Research
Despite comprising about 27% of the US population, the disability community has remained largely absent from diversity, equity and inclusion (DEI) efforts in precision medicine and genomics research. Research suggests that individuals with disabilities are willing to participate in precision medicine research, yet this group continues to be underrepresented. Reasons for this absence range from inaccessible research protocols (i.e. overly narrow inclusion and exclusion criteria) to the perception that it is too burdensome to recruit or accommodate disabled participants. Research can also be subject to ableism, which discourages marginalized communities from potential research partnerships. If not designed and communicated in ways that respect the complexity and diversity of human genetic variation, identities, and experiences, research risks reifying prejudices that marginalize those it hopes to benefit. This seminar will explore insights into various aspects of disability inclusion within precision medicine and genomics research with a lens on equity, accessibility, participation, and justice.
Featured speakers:
Megan Morris, PhD, MPH Associate Professor, University of Colorado, Anschutz Founder/ Director, Disability Equity Collaborative
Kara Ayers, PhD Associate Director, University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD)